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Creative
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Annotation

Self portrait stuttering. Oil on board 23 x 31cm. Painting by Paul Aston.

I have a stutter that has helped to shape my life in several ways. Recently I have started to accept my stutter as an integral part of what makes me who I am and feel really happy about it . I've been trying to find positive portraits of stuttering in art history and have drawn a blank so far so I thought I'd make my own. The inspiration came from Giovanni Bellini's 'St. Francis in the Desert' in the Frick collection. In this painting the saints head is thrown back while he receives the stigmata. It has a strangely familiar quality to me - that temporary loss of control over your body which looks similar to the experience of stuttering. I've attempted to create the atmosphere of this temporary loss of control in this piece.

References
Info
Pau has his eyes wide and his mouth open, with his hands upward near his face in this moment of stammering: his bright orange jumper contrasts with the cloudy blue sky in the background.
No items found.
Strand
Cultural
Topics
Annotation

Communication in this mode emphasizes the shared act of constructing, celebrating, and repairing common worlds.Carey famously suggests that communication is here akin to attending religious mass, where the point is not to transmit information but to draw people together in communion—to produce and maintain a shared view of the world through repeated practices. What makes the prayer, chant, and ceremony significant is their function as both social practices and techniques of the self. Through their repetition, we develop collective sensibilities and patterns of perception by which we can build common worlds. —meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44). Twitching bodies, stuttering tongues, signing fingers, and slurred lips (and all the affect they carry along) are no longer distracting “accidentals,” but the very materiality of communion. —In the mode of transmission, meaning would flee this scene, yet in the mode of ritual, the frozen supplication is a link to the body’s ancient relation to meaning and language, one in which we do not command but must together wait in the unexpected.

References
  • Carey, J. (2009). Communication as culture: Essays on media and society. Routledge.
  • Padden, C. (2015). Communication. In R. Adams, B. Reiss & D. Serlin (Eds.), Keywords for Disability Studies (pp. 43-45). New York University Press.
  • Constantino, C. (2016). Stuttering gain [Paper presentation]. International Stuttering AwarenessDay Conference. http://isad.isastutter.org/isad-2016/papers-presented-by-2016/stories-and-experiences-with-stuttering-by-pws/stuttering-gain-christopher-constantino/
Info

Communication as Ritual

  • Communication, commonness, communion.
  • James Carey: the model directs our attention “not toward the extension of messages in space but toward the maintenance of society in time; not the act of imparting information but the representation of shared beliefs".
  • Akin to religious mass.
  • Akin to reading a paper “[n]ews reading, and writing, is a ritual act and moreover a dramatic one. What is arrayed before the reader is not pure information but a portrayal of the contending forces in the world [emphasis added]” (p. 16).

<hr>

Dysfluent Accidents as Ritual

  • Carol Padden: Ritual emphasizes “performance, activity, and the materiality of communication itself. In this framework, meaning is not so much the definition of a word or sentence but instead is constructed in situ, in social and cultural activity” (p. 44).
  • Unlike sending a message, meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44).
  • Moreover, since communication happens “on site,” time cannot be transcended or otherwise avoided with speed but must be lived through.
  • Crossed Wires: perhaps it's not that my grumpy co-worker “misheard” my stuttered speech, but that he didn’t want to listen and did not want to belong in time to a common world with this disabled person.
  • The Stall: “Part of it feels like my body goes into a kind of supplication or prayer almost. I have a friend who once referred to it as ‘watching me ask for the word’” (Ellis, 2020, n.p.).
  • The misfire: “The unexpectedness of stuttering forces both listener and speaker into a space of trust and vulnerability. They must both give up control of the situation. The person speaking does not know when and for how long they will stutter. Likewise, the person listening does not know when to expect a stutter. In order for both people to communicate, they must trust one another. (Constantino 2016, para. 5)
  • Ritual? Anti-ritual?

Communication as Ritual

  • Communication, commonness, communion.
  • James Carey: the model directs our attention “not toward the extension of messages in space but toward the maintenance of society in time; not the act of imparting information but the representation of shared beliefs".
  • Akin to religious mass.
  • Akin to reading a paper “[n]ews reading, and writing, is a ritual act and moreover a dramatic one. What is arrayed before the reader is not pure information but a portrayal of the contending forces in the world [emphasis added]” (p. 16).

<hr>

Dysfluent Accidents as Ritual

  • Carol Padden: Ritual emphasizes “performance, activity, and the materiality of communication itself. In this framework, meaning is not so much the definition of a word or sentence but instead is constructed in situ, in social and cultural activity” (p. 44).
  • Unlike sending a message, meaning gets enacted in the very midst of unruly bodies that excrete “all levels of expression, from the minute details of discourse—from pitch, emphasis, gesture, head tilts, and eye gaze” (p. 44).
  • Moreover, since communication happens “on site,” time cannot be transcended or otherwise avoided with speed but must be lived through.
  • Crossed Wires: perhaps it's not that my grumpy co-worker “misheard” my stuttered speech, but that he didn’t want to listen and did not want to belong in time to a common world with this disabled person.
  • The Stall: “Part of it feels like my body goes into a kind of supplication or prayer almost. I have a friend who once referred to it as ‘watching me ask for the word’” (Ellis, 2020, n.p.).
  • The misfire: “The unexpectedness of stuttering forces both listener and speaker into a space of trust and vulnerability. They must both give up control of the situation. The person speaking does not know when and for how long they will stutter. Likewise, the person listening does not know when to expect a stutter. In order for both people to communicate, they must trust one another. (Constantino 2016, para. 5)
  • Ritual? Anti-ritual?
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Stuttering is an individual style of talk-in-interaction with occasional, variable, involuntary breaks in word and sound transitions. Influences on the quality and quantity of this speech style include socially-shared interpretations of the dominant narrative of stuttering, and the neuronal activity regulating speech transitions of the PWS.

— Leahy (2021)

Stuttering is an individual style of talk-in-interaction with occasional, variable, involuntary breaks in word and sound transitions. Influences on the quality and quantity of this speech style include socially-shared interpretations of the dominant narrative of stuttering, and the neuronal activity regulating speech transitions of the PWS.

— Leahy (2021)

No items found.

My dilemma as an SLT

How best to support speech and language therapists who are working with children and adults who stutter so that they work as allies in the context of evidence which shows that stuttering therapy has an overall positive effect.  No one treatment approach for stuttering demonstrates significantly greater effects over another treatment approach. Herder, Howard, Nye, & Vanryckeghem (2006).

  • Need to validate professional identities that support.
  • Learning from people who stutter.
  • Therapy which focuses on positive outcomes in terms of children and adults living the lives they want  to live and the development of therapy that focuses on education and resistance to normalising discourses.
  • Resists focus on fluency and cure in therapy.
  • Focus on confidence, fun and delight in finding and validating identities which fit with our dreams, hopes and ambitions.

My dilemma as an SLT

How best to support speech and language therapists who are working with children and adults who stutter so that they work as allies in the context of evidence which shows that stuttering therapy has an overall positive effect.  No one treatment approach for stuttering demonstrates significantly greater effects over another treatment approach. Herder, Howard, Nye, & Vanryckeghem (2006).

  • Need to validate professional identities that support.
  • Learning from people who stutter.
  • Therapy which focuses on positive outcomes in terms of children and adults living the lives they want  to live and the development of therapy that focuses on education and resistance to normalising discourses.
  • Resists focus on fluency and cure in therapy.
  • Focus on confidence, fun and delight in finding and validating identities which fit with our dreams, hopes and ambitions.
No items found.
Strand
Clinical
Topics
Annotation

Effects of Mr. Angry (my stammer) in school

  • Tries to make fun of me.
  • I know the answer but I don’t want to say it.
  • I put in the wrong answer so I don’t get stuck.
  • Sometimes act like I am thinking then when I am ready to say it I say it.
  • In the yard I don’t do it all because I am not worried about him, just concentrating about what I am playing.
References
Info
A child's painting on a paper plate: a mouth sprouts eyes on black sticks as well as black arms and legs.
A child's painting on a paper plate: a sad-looking face is painted messily with a blue mouth, black hair and a brown background. The edges of the plate are blue.
A child's painting on a paper plate: three cartoon figures are interacting, with the words 'Mr and Mrs Bump' adorning the top edge of the paper plate, written in child's handwriting.
A close up of Mr Angry: a child's drawing of an angry blue face, with a zig-zag green mouth, and a big black cloud above his head that could be his hair.
Red, green and brown scribbles hide a character beneath with his tongue sticking out.
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  • What kinds of ‘narratives’/voices do we want?
  • Resistance to narratives of recovery/overcoming.
  • Narratives of the non-linear, the messy, the entangled?
  • What kinds of ‘narratives’/voices do we want?
  • Resistance to narratives of recovery/overcoming.
  • Narratives of the non-linear, the messy, the entangled?
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What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?

Film still of Michael Palin: he has a bandage over his head, his eye, and he has chips in both of his nostrils with his mouth agape.
Michael Palin plays a character who stutters in A Fish Called Wanda (1988)

<hr>

‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell

<hr>

The cover of Dsyfluent magazine.
Dysfluent magazine by Conor Foran.

Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.

What is the fluent gaze? Can we see it in cinema? Is the gaze the right conception due to the auditory nature of stammering? Is there an oppositional gaze: a stammered/dysfluent gaze?

Film still of Michael Palin: he has a bandage over his head, his eye, and he has chips in both of his nostrils with his mouth agape.
Michael Palin plays a character who stutters in A Fish Called Wanda (1988)

<hr>

‘The scene for the portrait is designed by a stammerer; photographed and painted by a stammerer; of a stammerer stammering. The stammered gaze.’ — Patrick Campbell

<hr>

The cover of Dsyfluent magazine.
Dysfluent magazine by Conor Foran.

Close-up of Dysfluent mono typeface, in use in Dysfluent magazine issue 1.

No items found.
They won't frown always — some sweet
Day When I forget to teaze —
They'll recollect how cold I looked
And how I just said "Please."  
Then They will hasten to the Door
To call the little Girl
Who cannot thank Them for the Ice
That filled the lisping full.

— Dickinson (Fr 923, c.1865)

They won't frown always — some sweet
Day When I forget to teaze —
They'll recollect how cold I looked
And how I just said "Please."  
Then They will hasten to the Door
To call the little Girl
Who cannot thank Them for the Ice
That filled the lisping full.

— Dickinson (Fr 923, c.1865)

No items found.
No items found.
  • Fluent ↔︎ Stuttered
  • Medical models ↔︎ Social models
  • Speech restructuring therapies ↔︎ Neurodiversity

<hr>

Authentic self as fluent

Authentic self is repressed by bodily power (pathology). We can liberate the self by restoring normal functioning.

  • Behavioral therapy.
  • Medication.
  • Surgery.

<hr>

Authentic self as stuttered

Authentic self is repressed by social power (ableism). We can liberate the self by rejecting fluency.

  • Stuttering pride.
  • Activism.
  • Creative expression.
  • Identity is always relative.

<hr>

Identity is always relative

There is no true self to be emancipated, there is only different selves constituted through power relations.

I am constantly being encouraged to pluck out some one aspect of myself and present this as the meaningful whole, eclipsing or denying the other parts of self.

— Lorde (1984)

<hr>

A rejection of authenticity does not necessarily lead to determinism.

We are free in so far as we continuously rebelling against the ways in which we are already defined, categorized, and classified.

  • Fluent ↔︎ Stuttered
  • Medical models ↔︎ Social models
  • Speech restructuring therapies ↔︎ Neurodiversity

<hr>

Authentic self as fluent

Authentic self is repressed by bodily power (pathology). We can liberate the self by restoring normal functioning.

  • Behavioral therapy.
  • Medication.
  • Surgery.

<hr>

Authentic self as stuttered

Authentic self is repressed by social power (ableism). We can liberate the self by rejecting fluency.

  • Stuttering pride.
  • Activism.
  • Creative expression.
  • Identity is always relative.

<hr>

Identity is always relative

There is no true self to be emancipated, there is only different selves constituted through power relations.

I am constantly being encouraged to pluck out some one aspect of myself and present this as the meaningful whole, eclipsing or denying the other parts of self.

— Lorde (1984)

<hr>

A rejection of authenticity does not necessarily lead to determinism.

We are free in so far as we continuously rebelling against the ways in which we are already defined, categorized, and classified.

No items found.

Publication

The action of making 
something generally known.

— Oxford Dictionary

The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.

Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.

<hr>

Protest

A statement or action expressing disapproval of 
or objection to something.

— Oxford Dictionary

Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.

Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.

I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.

How does the idea of protest or display speak to earlier discussions on stigma?

I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.

It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?

Publication

The action of making 
something generally known.

— Oxford Dictionary

The format that the text / typeface is packaged in is as important as the textual content or typeface itself. Kind of like how in JJJJJerome’s work, there’s an interesting relationship to song or score sheets, through his use of a publication that is linked to his music. The format of this requires a unique level of engagement from the reader and listener.

Since I created the first issue of Dysfluent, I have been thinking about how the format of a publication defines the intent behind the work. It made me think about while there is a certain power to publication, there is also a quietness and consideration to it. At least from a design or artistic perspective, it requires a great deal of engagement from the viewer.

<hr>

Protest

A statement or action expressing disapproval of 
or objection to something.

— Oxford Dictionary

Recently I have been thinking of this concept of display, or posters, or for lack of a better term, protest.

Protest to me is really interesting from a creative or design stand point. For a person to display a poster, it is a deliberate act of reflecting an inner voice or identity, for the world to see.

I think of teenagers pinning up posters in their bedrooms, and of people marching on the streets voicing concerns. There is a certain passion or aggression (maybe not the right word?) to the idea of posters.

How does the idea of protest or display speak to earlier discussions on stigma?

I was interested to see what Fiona showed earlier in our talks, that banner where children visualised their stammer. There is something really nice there in terms of displaying their dysfluency.

It gets me thinking then. What is the content of the posters? What do they say? Do they need to say anything? or can they just be visualisations of dysfluency?

No items found.
No items found.
No items found.
Strand
Creative
Topics
Annotation

Portrait of Ramdeep Romann stammering. Oil on board 12 x 12 inches. Painting by Paul Aston.

Here are Ramdeep’s thoughts on his life with a stutter and this portrait collaboration.

“I have spent most of my life hiding my stammer, deeply ashamed of how I would be perceived by my peers if I were to block on some dreaded sound. This irrational and toxic fear was borne from a life seeing stammerers being portrayed in the most insensitive way possible on virtually every form of media I have ever watched. I cannot count the opportunities I turned down or denied myself; too many times I hid in silence instead of speaking my mind for fear of humiliating myself with this disability. For too long I thought a competent doctor should not stammer.

But finally meeting other stammerers and realising there is a whole community campaigning for our stuttered voice to be heard made me realise that I have nothing to be ashamed of, nothing to apologise for. My stammer is a part of who I am, WHAT I say is more important than HOW I say it, and I will never allow it to silence me again.

This beautiful painting by my friend Paul shows me finally turning away from the darkness and facing the light, with a stammered word etched on my face but my gaze still turned forward and upwards, unashamed and uncowed. The hospital scrubs represent my new found pride in embracing myself as a doctor who stammers.”

References
Info
Ramdeep smiles and looks upward in his portrait; he is sitting on a wooden chair, in his doctor's scrubs. A dramatic red curtain is draped in the background.
No items found.
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To suggest that the stutterer is simply repressed by power (be it societal or bodily) is to deny his agency, his ability to resist power.

To suggest that the stutterer is simply repressed by power (be it societal or bodily) is to deny his agency, his ability to resist power.

No items found.
More than two in five adolescents reported often keeping their stuttering secret and a further one in five said they sometimes kept it secret.

— Erickson & Block (2013)

<hr>

I wanted to be different, I just didn’t want the difference to be stuttering.

— Client

More than two in five adolescents reported often keeping their stuttering secret and a further one in five said they sometimes kept it secret.

— Erickson & Block (2013)

<hr>

I wanted to be different, I just didn’t want the difference to be stuttering.

— Client

No items found.

To stutter is often to feel the edges and the walls of lamguage, in the mouth, in the glottis, on the face, in the chest. It can be to experience those parts of language which do not signify but that force us to encounter the stuff that language is made of and the other buccal functions from which language is inseparable, such as eating, breathing, chocking, kissing, humming, hissing, coughing, drinking, sucking, vomiting, licking, swallowing, wheezing, and blowing. We often avoid paying attention to the stuff of language because it reminds us of the mechanical and involuntary crust upon the transparent flow of social and economic institutions and the rational expectations of social interactions.

I have two examples about what it might mean to experience the matter of language queered. The first I’ll call wood, and it comes from the Italian thinker Giorgio Agamben. Agamben writes in his essay “The Idea of Matter:”

“There where language ends is not where the unsayable begins, but rather the matter of language. He who has never reached, as in a dream, that woodlike substance of language that the ancients called silva remains, even when he is silent, a prisoner to representations.”  

— Agamben.

This is a very loaded assertion, but by “prisoner to representations” Agamben is referring to a use of language that is reduced to transparent meaning, pre signification, supple communication, and pure intelligibility that conceals the medium of that which you use to communicate. You’re a fly in a box who doesn’t see the glass walls. Silva, meaning wildwood, is also a term for a poetic form enjoyed by the ancient Romans, and it trades on its metaphorical meaning as material for construction. If language is woodlike, it has a texture, a grain, colour, rings. It is hard while it can be broken down, built up, pulped, and refigured. It is attached to non-wood things like leaves. Agamben’s reference to the dream gives it a more ethereal resonance. Without going too deeply into the dream theory, Freud noticed that words are often treated in dreams as though they were things. Jean-Francois Lyotard provides an example from a poster of what dreaming does to language. In Frédéric Rossif’s poster Révolution d'Octobre, the words are physically folded as if rippled on a 3D surface by the wind, and the letters become distorted. Conor Foran’s stuttering font is another example of the distortion of words by the pressures of desire upon language. Language can do a great deal outside of representation.

<hr>

Black typography reading 'Revolution D'Octobre' appears to wave, like a freeze-frame of a flag.
Lyotards example of dream language

A spread of Dysfluent magazine shows the various stretched and elongated characters of the Dysfluent Mono typeface, on a black background.
Conor Foran's Dysfluent Mono

To stutter is often to feel the edges and the walls of lamguage, in the mouth, in the glottis, on the face, in the chest. It can be to experience those parts of language which do not signify but that force us to encounter the stuff that language is made of and the other buccal functions from which language is inseparable, such as eating, breathing, chocking, kissing, humming, hissing, coughing, drinking, sucking, vomiting, licking, swallowing, wheezing, and blowing. We often avoid paying attention to the stuff of language because it reminds us of the mechanical and involuntary crust upon the transparent flow of social and economic institutions and the rational expectations of social interactions.

I have two examples about what it might mean to experience the matter of language queered. The first I’ll call wood, and it comes from the Italian thinker Giorgio Agamben. Agamben writes in his essay “The Idea of Matter:”

“There where language ends is not where the unsayable begins, but rather the matter of language. He who has never reached, as in a dream, that woodlike substance of language that the ancients called silva remains, even when he is silent, a prisoner to representations.”  

— Agamben.

This is a very loaded assertion, but by “prisoner to representations” Agamben is referring to a use of language that is reduced to transparent meaning, pre signification, supple communication, and pure intelligibility that conceals the medium of that which you use to communicate. You’re a fly in a box who doesn’t see the glass walls. Silva, meaning wildwood, is also a term for a poetic form enjoyed by the ancient Romans, and it trades on its metaphorical meaning as material for construction. If language is woodlike, it has a texture, a grain, colour, rings. It is hard while it can be broken down, built up, pulped, and refigured. It is attached to non-wood things like leaves. Agamben’s reference to the dream gives it a more ethereal resonance. Without going too deeply into the dream theory, Freud noticed that words are often treated in dreams as though they were things. Jean-Francois Lyotard provides an example from a poster of what dreaming does to language. In Frédéric Rossif’s poster Révolution d'Octobre, the words are physically folded as if rippled on a 3D surface by the wind, and the letters become distorted. Conor Foran’s stuttering font is another example of the distortion of words by the pressures of desire upon language. Language can do a great deal outside of representation.

<hr>

Black typography reading 'Revolution D'Octobre' appears to wave, like a freeze-frame of a flag.
Lyotards example of dream language

A spread of Dysfluent magazine shows the various stretched and elongated characters of the Dysfluent Mono typeface, on a black background.
Conor Foran's Dysfluent Mono
No items found.

6A01.1 Developmental speech fluency disorder.

International Classification of Diseases for Mortality and Morbidity Statistics.

Developmental speech fluency disorder is characterised by frequent or pervasive disruption of the normal rhythmic flow and rate of speech characterised by repetitions and prolongations in sounds, syllables, words, and phrases, as well as blocking and word avoidance or substitutions. The speech dysfluency is persistent over time. The onset of speech dysfluency occurs during the developmental period and speech fluency is markedly below what would be expected for age. Speech dysfluency results in significant impairment in social communication, personal, family, social, educational, occupational or other important areas of functioning. The speech dysfluency is not better accounted for by a Disorder of Intellectual Development, a Disease of the Nervous System, a sensory impairment, or a structural abnormality, or other speech or voice disorder.

6A01.1 Developmental speech fluency disorder.

International Classification of Diseases for Mortality and Morbidity Statistics.

Developmental speech fluency disorder is characterised by frequent or pervasive disruption of the normal rhythmic flow and rate of speech characterised by repetitions and prolongations in sounds, syllables, words, and phrases, as well as blocking and word avoidance or substitutions. The speech dysfluency is persistent over time. The onset of speech dysfluency occurs during the developmental period and speech fluency is markedly below what would be expected for age. Speech dysfluency results in significant impairment in social communication, personal, family, social, educational, occupational or other important areas of functioning. The speech dysfluency is not better accounted for by a Disorder of Intellectual Development, a Disease of the Nervous System, a sensory impairment, or a structural abnormality, or other speech or voice disorder.

No items found.
A man in a demin jacket stammers, with his eyes closed and his tongue between his teeth.
A woman stammers, with her eyes and mouth open, looking away from the camera.
A woman stammers with her mouth and eyes closed; her arms are folded.
A man stammers with his eyes closed and his mouth open, his hands in motion by his torso.
No items found.
No items found.
We send a clear message of non acceptance (desire, ability, reasons and need). We become part of a perfectionist society rather than the ‘good enough’ society. We create a dichotomy of success/failure.

— Campbell (2019)

We send a clear message of non acceptance (desire, ability, reasons and need). We become part of a perfectionist society rather than the ‘good enough’ society. We create a dichotomy of success/failure.

— Campbell (2019)

No items found.
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